News & Updates
Elections will begin next month. Members – keep an eye out for your ballot
Our latest MMS Project
MMS members are asked to join the NINDS effort to create Common Data Elements (CDEs) for Mitochondrial Disease. This effort is being led by Petra Kaufman. Please contact MMS officer Dr. Amy Goldstein for more information.
A committee has formed to create Consensus Criteria for Mitochondrial Disease Evaluations. We hope to provide a comprehensive set of guidelines to the clinician community by 2014.
Fellowship in Mitochondrial Medicine
The North American Mitochondrial Disease Consortium (NAMDC) fellowship is soliciting applications. Read more here
Joint Statement regarding the potential risks of carnitine treatment
In anticipation of concerns and possible confusion from media coverage of a recent article about possible atherogenic effects of trimethylamine oxide which could arise from carnitine administration, we post this statement in conjunction with other agencies. Read the statement at this link.
Congratulations to our newly elected officers:
President: Dr. Sumit Parikh, Cleveland Clinic
Secretary/Treasurer: Dr. Amy Goldstein, Childrens Hospital of Pittsburgh
Program Chair: Dr. Greg Enns, Stanford
Councillors: Fernando Scaglia, Mary Kay Koenig and Phil Morgan.
The new officers will be instated at the UMDF meeting next month. The former president will continue to serve in an advisory capacity.
We just completed our 2nd annual MMS Clinician Workshop at the UMDF meeting in Newport Beach. Thank you to Dr. Amy Goldstein for organizing a fantastic session and for all of you for attending.